Virginia Regulatory Town Hall
Department of Medical Assistance Services
Board of Medical Assistance Services
Previous Comment     Next Comment     Back to List of Comments
3/29/23  8:48 pm
Commenter: Lynn Kessler-Hiltajczuk

Please Don't Change Consumer Directed Care
I am writing to ask that DMAS not change the consumer-directed care model currently in place. Changing it just adds more stress and hardship for the parents of disabled children.
Finding attendants who can meet the medical needs of our very vulnerable son (age 22) has been impossible--especially for the salary offered.
Forcing parents to hire outside help or be employed by agencies just adds more pressure on families already dealing with the stresses of caring for their special needs child or loved one. 
Parents know their children and their needs better than anyone. Governor Youngkin expressed that point regarding the school system so shouldn't it also apply to all parents and children?
I would also say that the way this has been communicated to families with waivers is absolutely shocking. Families are learning about these potential new requirements via social media groups when they should be learning it from DMAS. The communication system is broken.
Please don't add more stress on parents and caregivers who have finally, usually after waiting years and years--got a waiver for their loved one and finally felt the slightest bit of relief only to feel it slipping away again.
Thank you for taking the time to read my comment. I hope you will consider my request with empathy and compassion.
CommentID: 215035