Virginia Regulatory Town Hall
Department of Medical Assistance Services
Board of Medical Assistance Services
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3/11/23  5:42 pm
Commenter: Anna

Please Do Not take away the rights of parents to be caretakers to their children with disabilities

When my child was approved for Medicaid we started using Home Health Aides for our Non-verbal autistic child.  That was over 10 yrs ago.  Within the last 10 yrs we've had over 100 aids coming and leaving our front door.  It took time to build trust and in most cases it never progressed to that level.  We were never able to find the right person to care for our son and if we did they would always leave because our child was too difficult to care for as he entered puberty.  When I learned about the Consumer Direct with parents being caretakes that was godsend.  I no longer had to watch my child and the aides as I never felt comfortable leaving them alone for more than 10 minutes.  Please do not take this service away for parents like myself. 

CommentID: 211514