Virginia Regulatory Town Hall
Department of Medical Assistance Services
Board of Medical Assistance Services
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3/9/23  10:08 pm
Commenter: MaryJo & Michael Bartels

Consumer Directed Care

We are one year into our FIS waiver with Consumer Directed Care for our adult son.  We waited three years on the wait list and finally have some peace of mind with me being his full time caregiver. We do not see how forcing me to be employed by an agency and being "qualified" to care for my own child is in any way rational. No one knows him better than us. He has complex medical needs that cannot be handled by an attendant so we would need a full time nurse as well to administer his medications.  He is not capable of self medicating. So, we would be paying two people to do the job that one does now.  That doesn't seem practical or judicious. Families like ours have enough obstacles to overcome (as do our kids) without interferences from outside making it more difficult for us to care for our loved ones. There will be no stranger(s) in our home and lives. It is too dangerous to our son's well being. His very life may depend on it.

CommentID: 211327