Our son has been on the wait-list for a few years now. He is priority but since he has us , we are told he really isn't priority. He would have been on it for over 10 yrs if it wasn't for the state's requirement for a psychologist to label him mentally retarded. Wasn't that a hurdle after the fact ( several evaluations during his early school years and not one Psychologist used that term specifically). He is severe ... totally care dependent, non verbal, non ambulatory, and seizures all day, every day. He ages out of public schools in May. We both need to work to make ends meet and we don't know who or how that will happen. With so much taken in taxes by the state ...income, no tax breaks on our property  nor on our adapted van to transport him still we get no real help for him nor us as aged caregivers. There has been budget surpluses and yet the slots are so very few and the wait lists getting longer and longer. I guess when caring for him disables or kills us then he may be really a priority then?! Let's think preventative and not reactive. Legislation speaks of helping families but as one can look at the stats it is all talk. Will our comments be read?     Please listen to the families in need.