Oppose the 56 hour cap on DD Waiver care and the support brokerage model of care
I strongly support the Arc of Northern Virginia's comments. I strongly oppose the proposed 56-hour soft cap on DD waiver CDPA care. Individuals on the DD Waiver who have higher support needs or medical monitoring needs cannot be served effectively with only 56 hours per week. I am a caregiver of a young adult with special needs who relies on personal care services for support in many basic activities of daily living. The care needs of these individuals like my son include a vast variety of assisted supports, tasks and oversight; bathing, dressing and undressing, eating, personal grooming, supervision, meal and snack preparation, cleaning up after meals, shopping, transportation and support to medical appointments, medication support and social activities. Many individuals with high support autism also need care directed at constant elopement issues and monitoring and support during epileptic seizures. These are 24/7 issues that cannot just be “reduced” simply due to a budgetary goal. For many, these are not extra services or conveniences but rather necessary supports that allow these individuals to remain safe and participate in daily life.
I also oppose the replacement of service facilitators with the brokerage model. Individuals with disabilities have the ability to replace a service facilitator if that service facilitator is not doing their job effectively or meeting the individual's needs. Service facilitators also develop a relationship with the individual with a disability and their caregivers that is extremely helpful in coordinating care. This choice and ability to have a working relationship would not be possible under the support brokerage model.