Action | Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System |
Stage | Proposed |
Comment Period | Ended on 7/9/2021 |
My precious Godson is getting married and his bride to be has the ALD gene. This was recently diagnosed and as a couple that hopes to start a family, this is a real concern. She went into adulthood before it was identified. Please add this testing for newborns so that Kay and Tom are able to plan for the future and know that early identification of this rare gene can help them! Virginia needs to get on board!