Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System
Stage Proposed
Comment Period Ended on 7/9/2021
spacer
Previous Comment     Next Comment     Back to List of Comments
6/30/21  2:16 pm
Commenter: Doris Birdsong

Early testing yields results!
 

My precious Godson is getting married and his bride to be has the ALD gene.  This was recently diagnosed and as a couple that hopes to start a family, this is a real concern. She went into adulthood before it was identified.  Please add this testing for newborns so that Kay and Tom are able to plan for the future and know that early identification of this rare gene can help them! Virginia needs to get on board!   

CommentID: 99323