Action | Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System |
Stage | Proposed |
Comment Period | Ended on 7/9/2021 |
As the mother of a child with SMA, I wholeheartedly support adding SMA screening in Virginia for newborns, along with X-ALD screening. Now that treatments have been approved for SMA, it is vital that infants be diagnosed as early as possible.